Matter of Time

Synopsis: Matter of Time is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease. Set against the backdrop of a powerful benefit concert organized by Pearl Jam frontman Eddie Vedder in Seattle, the film weaves together personal stories of patients and families, the scientific breakthroughs propelled by their advocacy, and the strength of a global community refusing to accept the status quo. Far more than a concert film, Matter of Time captures the emotional and physical toll of EB, the radical model of venture philanthropy driving progress, and the belief that art, science, and love can fuel a cure. With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves.